What is Adrenoleukodystrophy?
Adrenoleukodystrophy (ALD) is a genetic condition that damages the membrane (myelin sheath) that covers nerve cells in the brain and spinal cord.
How long can you live with adrenoleukodystrophy?
The childhood form of X-linked adrenoleukodystrophy is a progressive disease. It leads to a long-term coma (vegetative state) about 2 years after nervous system symptoms develop. The child can live in this condition for as long as 10 years until death occurs.
Can ALD be cured?
Is ALD a terminal illness?
Is ALD painful?
What are the first signs of ALD?
- loss of vision.
- learning disabilities.
- dysphagia (difficulty swallowing)
- lack of coordination and balance.
- intermittent vomiting.